In June of 2023 the Connecticut General Assembly passed groundbreaking legislation, House Bill 6672, “An Act Concerning Endometriosis,” directing UConn Health (UCH), along with its selected partner The Jackson Laboratory (JAX), to create a pioneering endometriosis data and biorepository program to promote research regarding (1) early detection of endometriosis in adolescents and adults, and (2) the development of therapeutic strategies to improve clinical management of endometriosis.
The effort was initiated through a recommendation by the
CT Endometriosis Workgroup, spearheaded by State Representative Jillian Gilchrest, which was established a year prior to increase awareness of endometriosis and expand access to care.
Following this directive, UCH and JAX built the first-of-its-kind state supported, multi-institution endometriosis data and biorepository program, with additional wrap-around programming to increase public and provider awareness, education, and engagement, as part of what is now called EndoRISE: Endometriosis Research, Innovation, Support and Education.
EndoRISE, is operated through a partnership between UConn Health and The Jackson Laboratory, with focus a focus in three main areas: public awareness, clinical education, and the administration of the endometriosis biorepository.
This comprehensive model has been pursued to best promote legislative intent and long-term public health outcomes, leveraging unique institutional expertise, in partnership with collaborative efforts among patients, advocates, legislators, researchers, and healthcare providers, creating a new framework for addressing endometriosis.
The ultimate goal? To improve awareness of and health outcomes for this highly invasive, underdiagnosed and under researched condition in Connecticut, while driving research breakthroughs for individuals impacted by endometriosis across the nation and beyond.